Monday, April 1, 2013

Monday, April 1st

First let me wish our niece Lexi a very Happy 12th Birthday!!

Today I put a few hours into work and then headed to the hospital.  Ed said Dr. Marvelli stopped by to check his incision (said it looked good).  The nutritionist also stopped by and ordered some lunch and dinner for Ed.  For lunch he had an egg and some toast.  Dinner was half a pb&j and some milk.  So good news is that he ate something--just a bit but better than nothing!  And we picked out his meal choices for tomorrow.  Bad news is that he had stomach cramping after dinner which caused him some pain.

While I was there his physical therapist came by and helped him move from the bed to the chair.  Wasn't in the chair for more than an hour when his wound ostomy nurse stopped by.  She talked to Ed about the colostomy and then replaced his bag.  She was very caring and really took the time to explain things.  A case manager also came by to introduce herself.  She will help us with insurance and decisions for future support.

It was a busy day and Ed didn't get any rest.  He still has significant swelling in his lower body and this makes moving very difficult.  He is off all regular IVs--just one when they give him antibiotics and for pain they just give him a oxycodone every 4 hours.  They still have him on a diuretic until they can get the swelling down.  Hoping that once that happens, he can move around a bit more.  He's also lost his voice which is odd and also makes it difficult for him to communicate.

So overall a good day although still a ways to go.  More tomorrow...

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My Story

Lately I find myself moving through the days, being with others, laughing, and living life. Days pass quickly and grief, sadness, and feelin...