For the 4th of July, we just stayed home and then went to the fireworks at UMass that evening. We haven't done that in years so it was nice to do that.
Earlier in the month we did celebrate my brother-in-law Tim's (married to my sister Cathy) 40th birthday with a BBQ/picnic at their house. It was nice to have the whole family together and just hang out and enjoy the day.
Ed continues plugging along. He is still only going for treatment every two weeks since they have discontinued the Erbutix. Some days are good days and some days are bad days. Immediately after treatment he usually feels fine--maybe just a little cold sensitivity. But by the next day, he doesn't feel as good--tired, achy, queasiness, etc. And the cold sensitivity lasts for about a week now. I keep telling him that this is expected and that he needs to just learn to take the time to rest and go slow after treatment. But after 2 years of going to treatment and feeling great, this is hard for him to accept.
The steriods definitely helped to clear up the rash on his face and he definitely feels better than he did the last couple months, but he won't listen to his body and continues to try to do everything and work full-time. I don't think the heat earlier this month helped either--I mean, that slowed all of us down!
Last weekend Dan went to Boston with his girlfriend Cassie and two other college friends (Nate and Jen). Ed and I took some time off of work and we headed to Mystic, CT. On Sunday we stopped by Foxwoods (no, we did not win big) and then Monday we went to the Mystic Aquarium. I think it was good for our mental health--to have a couple days off to just relax and do something fun.
Ed had another treatment this past Thursday so today is a slow day. His body is achy and I finally convinced him to take the pain prescription Dr. B gave him. His next treatment is scheduled such that he'll have some time to recuperate before our vacation. He's really hoping that he's scheduled it such that the cold sensitivity will be gone so that he can at least put his feet in the water. Can you imagine going to the beach and not being able to go into the water at all? Regardless, though, I hope he's feeling well enough to enjoy being on vacation--I think it will do good for his spirits! I know I'm looking forward to it as is Dan!
 |
| At Mystic Aquarium's "Birds of the Outback" (we're feeding a parakeet) |
 |
| Yes, we bought the touristy photo...why not! We never get pictures of the two of us together! |
