Sunday, February 24, 2013

After the Storm (actually, 2 weeks after)

Okay, so I wasn't very punctual about posting after the "Blizzard of 2013", or what is being called Storm Nemo.

Needless to say, we fared just fine.  Ended up with about 18-20" here.  Thankfully we never lost power--that is just terribly inconvenient!  Here are some pictures from that day.

View of the back deck through the slider.

View out the front window.

View of the front deck out the front door.

Me shoveling the back deck.

I'm enjoying this too much

Not sure Ed is enjoying this...



Out in Waltham, Dan got about 26" and didn't get plowed out until Sunday afternoon.  He did a time lapse video which you can view here: 

http://www.youtube.com/watch?v=9831yMvRcrU

His car is the one on the left so if you watch closely, you'll see Dan cleaning it off.  Pretty cool!

Last weekend (Feb 17th), my mother and I drove out to see Dan to deliver some stuff and for Grandma to see the apartment.  Grandma loved seeing the place and the two of them always seem to have things to talk about.  It is a special relationship!  Plus my mother and I got to spend 3 hrs together on the drive out and back so that was nice.

Grandma and Dan having lunch together in his living room.


Ed was planning to go but was not feeling well and did not feel he could make the drive out.  He has been experiencing stomach cramps,  (which we think is due to irregularity) and pain in his shoulder (due to arthritis), pain in his butt and legs, and problems sleeping.  We're trying to manage all of this but we haven't found the magic combination.  He's got a combination of medications--Ducolax and Miralax (to treat constipation), Clyindamycin (to treat diarrhea), Nucynta (for pain), Lidoderm (Lidocaine patch for shoulder pain), and Tylenol PM (to help with sleep).  He is also trying to stay off his feet for long periods of time.  All of this is very draining on him and so he also lacks energy.  And we have not found the right combination to get in front of all of this.  So this has been very draining on him.

He did have an MRI on his shoulder and Dr. McBride (orthopedic specialist) gave him another shot to relief the pain.  But that really hasn't helped and so they will need to discuss what, if any, next steps they will take.  Ed has his next CT scan on March 10 so we'll see how things are going.  But his biweekly appointments with Dr. Bowers shows really no significant changes--blood work and size of his liver continues to look stable.

It's just been tough on Ed lately being in constant pain and having no energy.  And I'm trying to be helpful and patient, but there's not really anything I can do to help.  We are three years into this journey so we do know we've been blessed to date.  It would just be nice if we could figure this thing out.  As Ed says, "it not bad enough I've got cancer, I've got to deal with all this as well?"

So we continue on.  We find joy and are thankful that Dan is settling in to the next chapter of his life and we are looking forward to the spring.  I love how the days are getting longer and Ed is making plans to regrip his golf clubs.  So onward towards Spring!




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