Wednesday, May 23rd, Ed had his biweekly doctor's appointment. Over the past week or so he's been randomly telling me "something's not right" and he feels his liver is enlarged. At his appointment on Wednesday, Dr. B. measured the liver and didn't record any change. The results of the bloodwork weren't ready when Dr. B met with Ed, so he sent Ed on his way and said he'd call him. Well an hour or so later, Dr. B. called Ed both on his cell phone and left a message at home. He said the bloodwork was showing that something was up with the liver and told Ed not to take the Xeloda as regularly scheduled, but instead call to get a CT scan as soon as possible. So Ed now has a CT scan scheduled for Wednesday, May 30th. Until we get the results of that, we won't really know what is going on. However, Ed is struggling with having no energy and also an odd sore shoulder. I'm sure part of having no energy is the worry about what is going on. The sore shoulder is just bizarre...he'll be fine all day and then will sit for 15 mins and all of a sudden his shoulder is causing him pain. He's also not sleeping well, partly due to the shoulder pain, so that isn't helping either.
So for now we wait. This weekend we have Dan's graduation party so all we can do is enjoy the weekend. There's nothing we can do until we know what the CT scan is showing. Of course, we try to remind ourselves that we've been "lucky" and for the past 2 years, we've basically been living with his cancer and not having to deal with the white elephant in the room. Ed not feeling well, though, is reminding us that this is a deadly disease that is in his body and at some point, the cancer will begin to win this battle. However, for 2.5 years Ed has been on the same chemotherapy mix and so we have certainly not used up all our options yet. Of course, some days are easier than others to focus on the positives versus the negatives. Easier for me to say than for Ed to do. I'll keep you posted...
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